Sunday, July 19, 2009

Oops, I forgot the last chapter!


It occurs to me I need to update this blog.

Vlad has been in remission for more than a year and out of chemo for 10 months. All is well!

It's a blessing to have a reprieve. But as many of you know, it's also a special hell being a cancer survivor. Every ache and pain, every fever, every "off-day" you may feel a little uncharacteristically tired, that voice returns: "Is it back?"

After the well-meaning M.D. Anderson bone marrow specialist (important to note he is not a leukemia specialist) scared the crap out of us, and we spent a couple of months in testing limbo, including sending a kit to Tanya in Odessa, which was held hostage for $50 by enterprising DHL thugs there, we got a second opinion. From his oncologist.

Dr. Conlon had a different take on things. Whereas Dr. MDA said a relapse would mean limited options, as in no more chemo ever and no chance of a bone marrow transplant down the road, Conlon said very politely, hogwash. He went so far as to say a bone marrow transplant at this time is probably not a good idea, although he said there are two very educated schools of thought on that subject, and no one knows who's right as of yet.

Bottom line: No bone marrow transplant at this time. Exhale.

As a result, Tanya has been here with us in the United States since March 28. She only got the visa because of Vlad's illness. So you gotta wonder if there's bigger wheels turning in this whole thing. Especially when you know their story, which is basically an updated Russian novel.

As sweet and frothy as Vlad and I's first few years of marriage were, the past couple of years have been heavy, with our cancer/hurricane year (bad stress) and our year with Tanya (good stress).

But that's the way it goes. Life goes on.

I don't plan on updating this blog again. I'm closing this chapter, praying the book is done.

Thanks for everyone's prayers, good thoughts and deeds. A special shout out to my brother, Bill, who always came on a moment's notice, and the Nezhinskys, who brought food and love almost daily, and were fearless when things were really bleak.

Sunday, September 28, 2008

The view from here


In this situation, the deal is that you drive down the road to bone marrow transplant, whether that's your destination or not. So we're on the road. On Wednesday, Vlad begins three days of intense tests at M.D. Anderson Cancer Center intended to get a detailed picture of his status and needs as a recipient. The worst of it, they say, would be another bone marrow biopsy, but at least that's the devil he knows.

He's taking three days off work, after being back for three weeks, missing days for a hurricane. During that time his boss got fired and they brought the new one in. They also have a new VP he's getting to know. ODS is pretty good people, as my dad would say, but I'm sure there's a limit, especially in this economy in freefall, and Vlad isn't happy about being out another three days. But he's going to work Saturdays to make up for it. I think he's doing fine at work, but you can understand his situation.

After this, I can only guess what will happen: We'll wait to see what his blood is going to do. If it doesn't behave, they'll try to match him. Then would come the transplant. I don't know how long, how easy or hard that would be. We just don't want to go there.

I signed up to be a bone marrow donor. They approved me initially despite my thalessemia. I was surprised. But I may get the boot once they see my blood sample.

I'm going to be with Vlad all three days at M.D. Anderson. I did something similar with my dad (pictured on top of Deer Mountain in Colorado in the '70s) when he was getting tested at M.D. Anderson before they did surgery to remove part of one of his lungs, where he had a cancerous tumor. It was several days of tests. You run from one doctor's office to another waiting and waiting.

Doctors in Dallas wouldn't do the surgery because Dad was already compromised by emphysema and taking out part of a lung would make breathing very difficult. But at M.D. Anderson, the surgeon took it on. At the time we were so happy that they would cut this bad thing out. But I remember the anesthesiologist kind of cringing in our pre-surgery meeting. He described the surgeon as a cowboy. I think he was trying to warn us. And things did pretty much go downhill from there. But that's another story.

I treasure one particular memory from that adventure. At the end of the second or third day of this process of being pushed and shoved around the hospital, we were spent. We're both scared to death worried if he's terminal or curable. Neither saying what we're thinking. After a few days of this act, life gets surreal.

We walked into a cardiologist's office. We're sitting in a consult room, waiting, waiting, waiting. Almost asleep. The door opens suddenly and we're startled. This nurse with a huge smile, bottle blonde hair and deep suntan comes in and practically shouts, "Well hello y'all! It's so good to see you! How are you today! You look so good! FanTAStic! Well, the doctor will be here any minute now, so y'all just sit here, OK? Great! Now, y'all take care, OK? All-righty!"

It was like an explosion of sickening phony creosote. Amid the surreal surroundings, she seemed hideously ridiculous. We looked at each other and immediately burst out laughing. We laughed for about five minutes. Our sides hurting. Tears coming down both our cheeks. It was a release of all the horror and pretense and bravery and fear. I was thankful for her entrance, but not for the reasons she would think.

Monday, September 22, 2008

A few things Ike took away

The Stingaree restaurant in Crystal Beach. The best seafood on Bolivar Peninsula. It's gone. UPDATE: Terry Turney was there and said it's still there, just heavily damaged.

Rollover Pass, aka "the cut," a popular fishing spot, is still there, but the bridge is damaged and the bait shop is gone. Terry and Linda's beachhouse. A birthday of mine in 2005.

The beachhouse and pickup in the miraculous Christmas snow of 2004.

This was one of our favorite spots along the Seawall. On a Sunday, we'd go down to Galveston and get some fresh seafood at Casey's or Fisherman's Wharf, and run by here for frozen pina coladas (the only time I drink them) and then head home. Something about the sound of the ocean and the briny air would clear our heads.

I believe this is the tail end of another gift shop below, which is next to this place. Where we were housed two gift shops. All the structures are gone, including the Balinese Room another few yards down.

Saturday, September 20, 2008

Refugee camp

While we got our power restored Sunday evening, what we didn't expect is a side order of guilt. The power/water situation has made a city -- well a region, really -- of haves and have nots. If you have, and you were raised in a church, well, you have to share the riches. Vlad and I have hosted our friends Lana and John and their daughter, Anna, every night sharing our kitchen (they've supplied most of the food), air conditioning, refrigeration and a working stove. Occasionally, we've given them use of the washer/dryer. I don't know how they've stood the humidity and heat all this time.

Last night they got their power back. We asked them to come back over anyway, to finish off the food, clear out their food from our fridge, etc. It was a good change of pace and the best of it was getting to know Anna better.

I've been taking bags of ice to work in our coolers, giving them to people still without power. And food; all the nonperishables we got for the duration of the Ike madness. They're slowly disappearing. It's taken the Chef Boyardee a full week to disappear.

The big thing now is laundry. People seem to have found the water and ice and gasoline. Now they're looking for laundromats or friends with power and appliances.

It's a surreal Houston/Galveston right now. Hard to get your bearings on what constitutes reality. It depends on what part of town you live in. On the west side of Houston, almost normal one block, total darkness the next. Galveston: you're out of luck till after Halloween. Woodlands: similar; the down side of living in a wooded paradise in tropical climes. East Houston and Port Arthur/Orange/Bridge City: a nightmare.

And Bolivar Peninsula: Much of it is off the map. If it gets electricity this year it will be a miracle.

Our friends Linda and Terry lost their place in Gilchrist on Bolivar. Post-Ike satellite maps show their place is a slab now. We have a lot of memories of that place. It's devastating to them. I'll talk about it at another time. It's too much of an open wound right now. But they made it through the storm in Beaumont. They spent a few days in Dallas with a friend, but have power again and are back in Beaumont.

Monday, September 15, 2008

Hurricane Ike photos

Poker after the lights died Friday night.

Saturday morning. We put the shelves on the ground ahead of time.

Bougainvillea on the balcony. It barely survived the sewer job months ago and found new life upstairs only to do battle with Ike.

Garage and driveway covered with leaves and shingles.

Anole looks shell-shocked. This looks like a little lizard I saved from Keezee's grasp awhile back. Note missing tail.

Unlucky neighbors, above and below.


Bill and Ginny Carole and her passion


Ginny and Buster in her room


Evan playing "Spore"Vlad grabbing Internet time

Smitty's in Lockhart
Serious Texas barbecue

U.S. Air Force convoy heading to Houston on the way home Sunday.

Pickup loaded with flats of Kirkland's water.

Eastbound with plywood.

My favorite road picture. (Click for larger version)

Sunday, September 14, 2008

Human again


We got back tonight and found our lights, water and phone restored. We danced for five minutes straight. We invited our electricity-challenged friends over to share the A/C and stove and ice. It was a very decadent party. Their 18-month-old didn't want to leave, I think, because of our A/C.

We cannot believe our luck. Our luck in having gracious family to put us up at the last minute and be so much fun. Luck that we were among the first 340,000 (of 2 million in Harris County) to get their electricity restored. Luck that I-10 eastbound was not the congestion monster we expected.

Today in Lockhart, Evan scratched off his Mom's lottery ticket and won $20. She said he is lucky. So I asked him if I could rub his head for luck. He obliged. So, hey, Evan: Thanks!

I'm going to bed tonight feeling charmed. I want to get to work early Monday. Good night and good luck.

Send ice

We're OK. I'm writing this from my sister-in-law's kitchen in Lockhart, TX. Most of you know Carole. She put us up last night. This morning Bill came with the kids, Ginny and Evan. We're getting ready to go to lunch and then to Wal-mart. Our shopping list looks like we're going camping.

Back in Houston, we lost power at 8:15 p.m. Friday, hours before Ike hit. We lost water Saturday afternoon and land-line phone on Saturday evening. The heat and humidity inside the house, even with every window and door open, is beyond description.

We're back to feeling human again, and are going back primarily because I have to work. I got out of hurricane duty this weekend and must report to work Monday. I just hope the roads are clear enough. It will be an adventure.

I think there are showers at work. We have friends who had their water restored, so Vlad can probably shower over there. We have other friends who couldn't take any more and this morning called us and said they were leaving for Austin, regardless of the work and school consequences.

There's not much time. We'll be taking battery- and propane-fueled items back with ice, as well as a cooler full of ice for us and our friends. We need to clean out the uber-smelly fridge tonight. We hope to get there before dark.

Thanks for all the calls. If you've e-mailed, I probably haven't seen it. What little battery-power we have goes quickly.

Love to all.